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Tuesday, May 17, 2011

Mikey Update 5/17/11

I know I'm way overdue.  Not much has happened in the last few months.  We've basically been in a holding pattern, hoping another lead pops up.  One thing that happened before that I never sent out is we got the official Cerebral Palsy diagnosis.  The good news is it's VERY mild and not progressive.  It appears only his legs are affected, and you'll see from the video below that the diagnosis is laughable.  On to more pressing matters...

He had another modified barium swallow today with views of his esophagus.  There are NO problems with his swallowing.  While you can see where the vascular ring used to be, but food and liquid pass just fine, so there are no concerns.  Basically, all of his issues - vomiting, etc. - are because of his gut.  We're going to talk to the GI about the next step.

Nothing is getting in his way, though.  He's growing like a weed.  He's gained four pounds in the last four months.  He's walking all over the place.  He actually got away from me today...and refused to come back.  This one is trouble.