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Saturday, May 1, 2010

Mikey Update 5/1/10

Okay, okay.  I know this is sorely overdue.

We finally got to meet the surgeon, and the surgery is scheduled for Tuesday, May 18th.  The surgeon said that he isn't completely sure this will fix the aspiration, and Mikey may have swallowing issues his whole life.  The surgery is still necessary, though, to prevent breathing problems as Mikey grows.  The vascular ring could potentially compress the trachea, even though it's not now.  The surgery is very invasive (left thoracotomy), and there are possible complications including hitting the laryngeal and vagus nerves (causing lifelong speech problems) and a potential chest tube.  The surgery is only 1-2 hours, according to the surgeon, so at least the anesthesiology risks are low.

We also went to a physical therapist for his neck and back issues.  She said all I've been doing is perfect, and she gave me another stretch to do.  Also, she suggested I do that stretch and another I've been doing 10-12 times a day.  That's a lot of crying...for both of us...  We start seeing her twice a week after the surgery and recovery, June 1st to be precise.  I think she's great, and Mikey seems to like her, so I'm optimistic.  All the kids at the practice think their therapy is playtime!

We have a long road ahead of us, relative to Mikey's little life so far, but at least we're moving forward toward recovery!

Thanks for all your prayers and notes and kind words.  Nothing goes unnoticed, even if I'm too spacey to acknowledge them formally!  (I should add here that Mikey has decided 4:30 is a good time to wake up...no matter when he went to sleep...lucky me...)

God is good, and He takes care of us.  He put a great surgeon in our path (thanks, Sarah!), another great surgeon at our disposal for any and all questions (including getting the scoop on the aforementioned surgeon), wonderful friends and family, some of whom have been through this in some form and others who just selflessly give us support and stress relief, and, most importantly, His Son who gives us hope in all circumstances.  God is good.

What a friend we have in Jesus,
All our sins and griefs to bear!
What a privilege to carry
Everything to God in prayer!
Oh, what peace we often forfeit,
Oh, what needless pain we bear,
All because we do not carry
Everything to God in prayer!

Have we trials and temptations?
Is there trouble anywhere?
We should never be discouraged—
Take it to the Lord in prayer.
Can we find a friend so faithful,
Who will all our sorrows share?
Jesus knows our every weakness;
Take it to the Lord in prayer.

Are we weak and heavy-laden,
Cumbered with a load of care?
Precious Savior, still our refuge—
Take it to the Lord in prayer.
Do thy friends despise, forsake thee?
Take it to the Lord in prayer!
In His arms He’ll take and shield thee,
Thou wilt find a solace there.

Blessed Savior, Thou hast promised
Thou wilt all our burdens bear;
May we ever, Lord, be bringing
All to Thee in earnest prayer.
Soon in glory bright, unclouded,
There will be no need for prayer—
Rapture, praise, and endless worship
Will be our sweet portion there.

1 comment:

  1. Katie,

    After having just gone through major surgery with 7 month old Savannah - my heart totally goes out to you. I'm so sorry you and Mikey and the whole family have to face this - but I know that your faith is strong and God will be with Mikey in every moment. Many many people are praying and holding sweet Mikey in the healing Light and Love of Spirit. Please know my thoughts and support are with you!

    Love and blessings,


    “Tell God all that is in your heart, as one unloads one's heart, it's pleasures, and it's pains, to a dear friend. Tell him your troubles, that he may comfort you; tell him your joys, that he may sober them; tell him your longings, that he may purify them; tell him your dislikes, that he may help you conquer them; talk to him of your temptations, that he may shield you from them; show him the wounds of your heart, that he may heal them; lay bare your indifference to good, your depraved tastes for evil, your instability... If you thus pour out your weaknesses, needs, troubles, there will be no lack of what to say. You will never exhaust the subject. It is continually being renewed. People who have no secrets from each other never want for subject of conversation. They do not weigh their words, for there is nothing to be held back, neither do they seek for something to say. They talk out of the abundance of their heart, without consideration they say just what they think. Blessed are they who attain to such familiar, unreserved intercourse with God.”
    Francois Fenelon